Monica Marcelis Fochtman, PhD, CPRW, CCTC

Sick of all this cancer?

Nicole Scobie blogs about her adventures in “Cancerland and Switzerland.” This most recent post is spot on. Please take a few moments to watch Erin (who is battling DIPG) and then read Nicole’s post about Erin’s mom Amanda and the reaction of her “friends.”

Kids with cancer need your financial support. They need research for them. They need all of us to teach our children about friendship, love, caring for those who are injured or sick, and loyalty.

Parents of children with cancer need your compassion, empathy, and listening ear, not your pity.

Seeing with new eyes

Part I

Tuesday was the first day that I was required to work at the University’s summer orientation program for new students. In the afternoon, we help students put together their first-year schedules. As an academic advisor, this is my job and about 85% of the time I love it. Orientation is a different beast on multiple levels. First, the students are overwhelmed and in a post-lunch food coma. Second, the room is very warm, thus adding to the sleepiness. Third and most challenging, the range of student experiences, preparation, attitude, and willingness to listen is drastic. In 60 minutes, I advised 1. an Honors College student who had enough AP credits to make her a sophomore; 2. a young man who was pre-enrolled in all of his courses and all of them were right (!); and 3. a young woman who was required by the University to take developmental writing and math, yet who was in complete denial about her ability to handle college-level Chemistry and fought us on her schedule. I do not offer this as complaint. I can’t stand whiners. I offer it as context for the layered complexity of advising work and the challenge of dealing with unknowns. At summer orientation, you never know what is going to walk in the door and end up sitting across from you. For me, this is both stimulating and a little overwhelming.

I came home on the overwhelmed side. I just could not understand (or accept) how in 2013 a student graduated from high school not being able to do math or write at a pre-college level. What do students learn in high school? What don’t they learn? Whose responsibility is it to teach them? Why don’t students take more ownership of their experiences? How can young people the same age, from the same state, in the same year, come to college at completely different levels? What were the social, economic, political, racial, and geographic factors that impacted their experiences, their level of exposure to higher education?

I felt sad. Sad for my student, that she has such a hard climb ahead of her. And a little sad for and disappointed in myself because I am not sure that in our 20 minute interaction, all that much was accomplished. How can one or two interactions with me and my colleagues possibly undo all that she has learned (or not) in the last 18 years?

Part II

After dinner, I took L to his baseball game. In my recent efforts to spend less time on Facebook and on my phone, I brought along a magazine that I then proceeded to leave on the front seat of my car. Instead of feeling sorry for myself for forgetting my magazine and about my self-imposed Facebook hiatus, I sat and listened. Because I wasn’t distracting myself with technology, I was able to really see all the things that were happening around me. I didn’t just look at them with my eyes, I felt them with my mind, my heart, my soul. At an elementary school baseball field, in a medium sized MidWestern, University town, I observed…

A man in a wheelchair arrived to the game with his two sons. The boys were on scooters a few feet in front of him. Before they ran out to meet their teammates, the dad called them over, gave them their hats, wiped his shirt with his tongue and cleaned smudges off their faces. It was such a tender moment of kind parenting.

Four sets of grandparents there to cheer on their grandchildren. They were all married. They were holding hands. One of the sets of grandparents lives with the parents of one of my son’s teammates. The way they laughed together, the knowing way they touched each others’ arms, hands, faces, was so moving to me.

There was also a bi-racial couple there; their older son was on the other team. When the dad arrived to the game, the younger boy shouted, “Dad!” And then bolted off his mom’s lap and ran full speed to meet him. Then the Dad went over to the bench and said hi to every kid on his son’s team. Every one. Then he greeted all the parents with a huge smile, handshake, pat on the back. And he was so…happy. You could not see this man and not smile yourself.

And, on the other team, there was a young boy with Down Syndrome. I will confess that when I saw him and his mother approach the field, I was nervous. With so much talk about bullying and kids being cruel to other kids, I was nervous. Would anyone on my son’s team, or my own son, say something mean or inappropriate? What would the behavior and attitude of the coaches be? His coaches and teammates did not treat him different than any other player. He participated fully in every part of the game. What a gift it was to watch this young man play. And what a gift it was to the young players out there- and to me- that his teammates and coaches treated him with the dignity and respect that he deserves.

All of this sounds like a scene from a bad Hallmark movie. But, it’s true. Perhaps the diverse community that I witnessed has nothing to do with my experience earlier that day. Maybe though, it has everything to do with it. As a person of faith, I believe that the Spirit was tapping me on the shoulder and giving me the grace to see with new, grateful eyes. I was sitting there thinking, “Wow. This is so cool! THIS is where I choose to live and work. All of these wonderful students, people, families, communities, and possibilities are right here. Right in front of my eyes.”

If I had been on my phone or reading, I would have missed all the good things and people that were happening on the baseball field. Earlier that day, I was focused on the wrong things in my interactions with my student and I missed the point. The questions I need to ask are not about her and her past experience, which were beyond her control on some level. The better questions to ask are about me and how I could have seen the situation with different eyes. What could I have done differently? Could I have been a stronger touchstone for this young woman? Although her facade said one thing, underneath she was probably very overwhelmed and confused.

I am going to work to see my students with new eyes. I don’t have to go to orientation. I get to meet a new group of students and help them. I may not be able to change the system they came from, but I can help them navigate the one they are entering.

Each day is a chance to see with new eyes. What are the areas of your life and work that need a new perspective? What will you do today, tomorrow, next week to see with new and grateful eyes?

Moto Monday…a day late.

Thanks for sharing this! So true. Pushing the “reset” button is key!

jenkeegin.com

So move on! Get out there and make some magic!

View original post

Presence

We are our own worst critics. As someone who was born and raised in the fast-paced, competitive environment of the east coast, I am no exception. I am always harder on myself than anyone else.

Recently, my husband and I had the great fortune of going on an early anniversary trip. It was just the two of us. No agenda, no plans, no timelines. It was bliss. We tooled all over “Up North,” went out to dinner, went to a winery. I took some photos of our trip and posted some of them on Instagram or Facebook or Twitter. Probably all three. But, I didn’t post every one and the ones I did post weren’t in chronological order. In one of them, my hair was a mess (so, I thought) and my eyes were all squinty. Darn that sun!

Both of our boys are participating in organized sports this spring. I have taken some photos and posted a few. I should’ve posted more of them. What if someone notices that there are three photos of L but only two of C? I should get more up there. I should take a picture of C with his coach and his team at their final game tonight. I should print them out and mail them to my grandmother.

We have three beautiful lilac bushes in our front yard. They sit right under the windows in our living room. They are so huge that you can see and smell them from across the street. This is my favorite season. Our lilacs are late bloomers and they are white, not purple.

Last week, L and I were playing outside. We were tracing each other with sidewalk chalk. He gave me huge high heels in pink, my favorite color. When I traced him, I was instructed to include his hat. “Make sure you get my hat Momma. Because I am a baseball player.” While we were outside, I kept getting luscious wafts of lilac. The breeze would kick up and I could taste them on my tongue. I should’ve gotten my phone, taken a photo, and then posted it on Instagram. It would have been very artsy.

Instead, I ignored the “shoulds” and kept coloring with my son. When were done, we walked over to the lilacs together and inhaled.

I am working on presence. Physical, mental, emotional presence not social media presence. Just because I didn’t post photos for everyone else to comment on and “like” doesn’t mean they didn’t happen. There are moments that should belong to just me and my family. That’s a should I am okay with. Those lilacs sure do smell wonderful.

Blank Pages

It is always surprising to me how the various areas of my life converge. Not surprised in a “Oh my gosh, how did THAT ever happen?” way but, more of a sheepish, “I shouldn’t be surprised, because of course that is how life is!” way. Lately, I have been wanting to write more. Professionally about my dissertation research and my own journey as a mid-career mom. I have also been wanting to write about our journey through childhood cancer and how it is has impacted our marriage, our family, our faith, and our future.

Yet, excuses always stop me.

I don’t have time (not true).

Who am I to pretend to know about these things (well, I am someone who has lived them).

No one wants to hear what I have to say (if true, who cares?)

Two things recently happened within weeks of each other that have finally pushed me to sit here and write.

First, I was invited (thank you godesses!) to a meeting about how to write for publication. In that meeting, the Dean of my college asked me, “so Monica, when are you going to publish your dissertation?” Later in that meeting a colleague whom I deeply respect and admire said about her own research, “well, it’s not research if it’s not disseminated. I owe it to my participants.”

Gut check.

Isn’t this why I landed on my own topic as well? To learn something from my amazing participants and then, have the profession learn from their experiences as well?

Second, a young cancer warrior named Zach Sobiech died on Monday morning. Many people the world over know Zach because of his beautiful, soulful song, “Clouds.” We “know” Zach because he is a student in my sister-in-law’s youth group in Stillwater, MN. I am friends with his mom on Facebook and have occasionally written to each other as the moms of cancer warrior sons. Laura has documented Zach’s journey on his Caringbridge site. Her words, Zach’s life are awe-some, in the truest sense of that word. Laura recently wrote:

“Blank pages can be very frustrating and intimidating. Where do I start? What words do I settle on this blank page when there are so many words clattering around in my head? Sometimes it’s just easier to walk away and leave it blank. But, it’s our story. It’s Zach’s story. And I need to reign in these words and lay them out for today and for tomorrow.”

Gut check 2.

So, with that, no more blank pages on this blog that I started almost 2 years ago. I now have 2 goals for Summer 2013:

1. End the summer with a submittable journal article about my dissertation research. Submit to peer reviewed journal by August 31, 2013.

2. Blog, about whatever I want/feel, once a week.

The ten amazing women who were participants in my dissertation research have a story. I should help them tell it. I have a story. My son has a story. Maybe he will want to have these words to go back to someday. Maybe not. That’s okay. Either way, I have a voice. I want to write. I am going to try harder to do more of it. I appreciate your cheering along the way. Thank you.

The “Have it All” Trap

Lately, there has been talk and backtalk about Anne-Marie Slaughter’s piece, “Why Women Still Can’t Have it All” which was printed in the July/August issue of The Atlantic. First, I will say this. I think Slaughter is spot-on. Spot on. I believe that she was courageous to say what she did and her “calling out” of the current work-life system was timely, appropriate, and necessary. Two of her statements especially resonated with me:

“I still strongly believe that women can ‘have it all’ (and that men can too). I believe that we can ‘have it all at the same time.’ But, not today, not with the way America’s economy and society are currently structured. My experiences over the past three years have forced me to confront a number of uncomfortable facts that need to be widely acknowledged- and quickly changed.”

and this:

“in short, the minute I found myself in a job that is typical for the vast majority of working women (and men), working long hours on someone else’s schedule, I could no longer be both the parent and the professional I wanted to be”

BOOM!

She spoke my very soul. That is exactly how I felt when I was a Director (most of 2011) and is exactly why I left my Director role.

YES! BRAVO! THANK YOU! Thank you for putting this out there! I think her piece was gutsy and brave. And, I appreciated hearing from another working woman who re-evaluated her life and her priorities and made a choice- a personal and professional sacrifice that works- or at least works better for now- for her and her family.

What is sad, to me, is that she felt she had to do this. For various reasons, which she outlines in her piece, Slaughter felt that she (emphasis mine) could not, in her high-level government position, be the kind of professional and mother that she wanted and need to be, and that her children wanted and needed her to be. I thought that was the intent of her piece. Obviously, I am not her. I have no idea what her intentions were. But, I read it as a commentary on her own work-life experiences and her wrestling with the negotiation (my word, not hers) of motherhood and professional life. I was excited and energized. I thought, “Wow! Yes! Maybe now we will have a real conversation about current practices, policies, and practices that have become policies, related to work-life negotiation.” Let’s talk about the “uncomfortable facts” (Slaughter’s words) that need to be changed. Let’s talk about why she felt she had to do this.

Unfortunately, my enthusiasm has already waned. The responses I am reading are ripping on Slaughter as elitist, privileged, over-achieving, not doing enough. All of which Slaughter also addresses in her piece.

One of the first responses I saw on-line was this article. In four or five paragraphs the author manages to:

1. complain about the graphic that was used- a naked toddler sitting in a briefcase. Okay. A little trite. Overused. Sure. But, really? I can’t imagine that Slaughter herself picked that graphic. And, it worked. Because you wrote about it and now thousands of other bloggers are writing about it, too.

2. bemoan the phrase “have it all.” Also trite? Also overused? Yes. Isn’t that part of Slaughter’s point? She admits that she fell into the “have it all trap” AND that she unwittingly made the generations behind her feel guilty for not achieving it all.

Finally, the author then says that the core problem with Slaughter’s article is that she frames work-life as only a woman’s issue. Okay, I am with you on this one. Currently, the work-life conversation is framed as a working-women-with-children issue. That is indeed part of the problem. (Although there are exceptions- see Brad Harrington and the new Dad study done by the Boston College Center for Work and Family).

Women are living it. Women are doing a lot of the writing and commentating about it. I think this was also Slaughter’s point.

And, sadly, women are also the ones doing most of the tearing down of other women and their choices. Which is my point here.

All of this makes me feel…overwhelmed. Annoyed. Frustrated. One woman cannot possibly be the voice for every other woman’s experience. Would we want her to be, even if she could? Slaughter wrote about her experience. I write about my experience. You write about yours. That is what makes the world go round. And, that is also what starts the dialogue and will push agendas forward.

Work-life is an issue for anyone who has a job and a life, which is pretty much, well, everyone. There absolutely needs to be more dialogue. Let’s focus on that & continue to advance the conversation.

Happiness is

June 19
How do you define happiness?
Dana

Playing hooky with my friends

3 #ReverbBroad posts for the price of one!

June 11
If you were to play hooky from work today, what would you do instead?
Krissy

I would actually need at least four days to play hooky. One day to drive to New Jersey to pick up my sisters (my first best friends). Two days to spend at the beach, while “down the shore.” One day to drive back to reality.

While at the beach, I would sleep, read, and eat myself into oblivion. After a day of “sunbathing” (with full-on sunscreen and a huge hat, because now I know better!), we would eat seafood and drink ice-cold beer. Then, we would stroll up and down the boardwalk. I would not care that the sea air was making my hair too curly. I would eat a Kohr Brother’s orange & vanilla soft-serve custard, on a cake cone with rainbow sprinkles. I would fall asleep with a smile on my face, while the ocean lulled me into a deep, dreamless sleep.

June 15
Who was your first best friend?
Kristen

I always struggle with questions that force me to quantify or label things. First, best, favorite…I am not a fan of absolutes. But, this absolute question was actually easy. I am fortunate to have two amazing younger sisters whom I also count on as my best friends. It was not always this way, I am sure. Of course we fought, and teased, and were mean. That is what sisters do. But, under all of that sibling stuff, there has always been genuine love and affection for each other. We have always cheered for one another. We have supported each other through break-ups (“Of course he is a jerk! Let’s burn all the stuff he ever gave you!” True story.) We stood up for each other at weddings (nice bridesmaids’ dresses) and have consoled and counseled each other through motherhood, breastfeeding, work-life negotiation, and suburbia. My mother was right, “there is nothing like a sister.”

June 17
What three things do you want more of in your life? What three things do you want less of?
Krissy

1. Friends. I had no idea that this time in my life would be so isolating. I have friends. My sisters. A few from high school. A few from college. One from graduate school. One from my year as a Holy Cross Associate (Americorps Volunteer). One from my first job. But, all of these people are far away. Across the country far away. I am slowly meeting people at work and at my sons’ school. But, I would not necessarily call these current people friends. I have a lot of acquaintances. I have a lot of women in loose circles whom I respect and admire. I have a lot of people that I would really like to get to know better. I have a mentor (thank GOD for her!). But right now, I would really love a soul-sister. A fellow girlfriend I can go walking with, get my nails done with, have drinks with, call up and vent about my day with. This type of friendship is hard to come by and takes time to nurture and develop.

2. Exercise. The mental and physical benefits of this are self-explanatory.

3. Organization/Motivation. Confession: I am not exactly sure what I am doing with my time these days. I feel busy all the time. Distracted. Yet, very little seems to be getting done. There is always laundry to fold, dishes to wash, toilets to scrub, a garden (first one ever) to weed and water, maternity clothes to donate, on and on and on. I don’t want to fall into whining (too late?) so I will stop here. I would love to be organized and motivated.

Less

1. Childhood cancer.

2. Childhood cancer.

3. Childhood cancer.

Finding a partner you can move on “with,” not from

June 12
What was the best decision you ever made?
Niki

The best decision I ever made was to have a “relationship defining talk” with a co-worker whom I thought I was starting to have feelings for.

I had no idea that when I took my first “real” student affairs job in 1999 that it would lead me to my best friend. I had never even heard of Hope College or Holland, MI. Heck, back then, I am not really sure I could have correctly placed Michigan on a map. But, I got heavily recruited at a professional conference, interviewed, got the job, etc. etc. Second year into the position, one of my co-workers and my only friend in the entire state of Michigan leaves me! Her leaving set the process in motion to hire another hall director. We interview a bunch of candidates and Sean is one of them. The only thing I remember about his interview was that he had a lot of experience and nice eyes.

We spent almost every day together the first weeks of the semester. RA training, meetings, fire drills, crappy cafeteria food (breakfast, lunch, and dinner), meetings, meetings. You really get to know someone pretty well when you are in all those meetings! Sean is also Catholic, so we went to church together and bonded over being the only Catholic people in tall, white, blonde, Reformed, Dutch, West Michigan.

One weekend I went away to see my sister play soccer. The whole drive back to Holland, I thought about how I needed and wanted to talk to Sean to tell him about it and to tell him I was back safe. Call him up. He was waiting for me to call, too. Huh. We work together. We work together all the time at a really small conservative institution. Huh.

One week later we are driving to a mall (I don’t even remember what for) and I tell him that I think we are flirting with each other. That I think I like him. That I think he likes me, too. But also that I don’t want to read into anything. He turns to me and says, “I like you. Read into that.” Best relationship defining talk ever.

10.5 years later we are still together and have faced some challenging times (see next answer below). There is no one else I want to walk with along the way.

June 10
What was your hardest parenting or partner moment?
Dana

When I first read this, I honestly thought that my answer would be our son’s cancer diagnosis. Devastating. Crushing. Life-altering. However, that has not been the hardest part. For me, the hardest part has been the “moving on” into the world of cancer survivorship and the “off-treatment” life.

Our son is a cancer survivor.

Or, our son is a CANCER survivor.

Or, our son is a cancer SURVIVOR.

The moving-on has been harder than I thought. For me, the off-treatment life has been a constant negotiation of vigilance and paranoia; and whichever one I choose depends on the day. A cough is not a cough. When my son gets a fever or a stomachache, I panic and I must choke the waves back down or I will drown. Sometimes I feel like there is too much cancer in my life. Sometimes I have bouts of “survivor guilt” because our son made it and so many others do not. Other days, I am madder than hell and I don’t feel guilty at all because every child diagnosed should have the chance to survive.

My husband is kind, patient, hard-working, funny, passionate, devoted, loyal, and an optimist. I am some of those things and a slightly pessimistic realist. His focus is truly on the moving on. He believes and acts as if you can move on without forgetting. I know he is right. I know that I can have our experience with the C word shape and mold me, but not define me. I just don’t know how or where to go. Yet.

Must haves: Outdoor showers, porches, and patios

June 8
What are your favorite decorative items/pieces of furniture/household features?
Kristen

As I mentioned before, I grew up going “to the shore” for our annual summer vacation. Two glorious weeks in Sea Isle City, NJ. It really was the most innocent time in my life. During the day, my siblings and I would swim in the salty goodness of the ocean, feed (or get attacked by) seagulls, build drip castles (mine were best!), and eat peanut butter and jelly sandwiches which always managed to have sand in them, too.When we tired of the beach, we would attach playing cards to the spokes of our bikes with clothespins and ride all over the island in search of penny candy or soft-serve. At night, our family would go out to dinner or drive up the island to the boardwalk in Ocean City, NJ.

Part of the getting ready ritual always involved an outdoor shower. I looked for pictures of some on-line. This one is the closest I could get. All of the houses we rented had an outdoor shower. None of them were this nice! Picture more rickety wood, chipping white paint, and pure vacation perfection. Blue sky above you, salt air, the roar of the waves in the background, and your favorite shampoo all mingling together.

The best part of the outdoor shower was taking one at night. Replace the blue sky with stars…ahhhhh! Now that I am older, I think all future outdoor showers will involve cold beer or red wine to complete the sensory experience.

I live in Michigan now. While there is no ocean here, we do have a pretty big lake that has just as much to offer, minus the salt. My new favorite place is Pentwater, MI. It is a small, lake town with a quaint main street, no chain restaurants, lots of bikes, and places to make memories with your family. Through the very generous help of some family friends, my husband and I recently purchased a rental cottage business in Pentwater. Check out Hilltop Cottage here!

When our son was in treatment, we could not go anywhere or do anything. Ever. The summer of 2010 marked the beginning of us reclaiming our new life. We did everything that summer that we couldn’t do during treatment, including swimming in that gorgeous Lake! That summer, we discovered Pentwater. The goal in purchasing this home is to give families who are just coming off childhood cancer treatment a week’s vacation at the lake.

The best parts of Hilltop Cottage are the front porch and screened in patio on the side of the house. There are comfortable chairs for rocking, speakers for the tunes, and hopefully, lots of family and friends for conversation and laughs.

I will always be within driving distance of water! It is good for my soul.

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this: